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Surprised to be Standing: A Spiritual Journey ReviewSurprised to be Standing: A Spiritual Journey
Steven E. Brown, Ph.D.
When author Steven Brown's ambition to be a professional historian was
derailed by disability discrimination he had to make some choices. Readers may
imagine themselves simply abandoning their own ambition and giving over to disability.
Gaucher disease is certainly a good reason and excuse. But it is not the story of this
book.
Instead we are treated to sharing questions like seems `why me?' and `what
now?' and `how did this happen?' And the answers are the seminal moment of his
virtual creation of the concept of a disability culture. "If this is happening to me surely
it must be happening to others" lead to a whole new way of describing disability and
meshing it with the desire do something extraordinary.
The exciting adventure of the mind that he describes is thrilling. It includes
truly revolutionary times in Berkeley with Ed Roberts and others. His friendship with
Judy Humane. The collaborations with Paul Longmore, Laura Hershey and others reads
like a virtual who's who of the intellectual power houses that laid the foundation for
the modern disability rights movement. A movement in which Brown's place is secure.
This book is a guide for the emerging genre of disability writing in which life,
normalcy, desire, family, career and finding one's way is far more important than a
diagnosis. There are some pretty amazing details regarding Gaucher disease and its
peculiar tricks of pain and frustration. But the book is not about Gaucher disease.
It is about a rather normal (if uncommonly brilliant) person coming to grips with the life
they have and rather matter-of-factly getting on with it.
For anyone who loves a good story this is one. For those who are curious about
a story with some unusual `challenges' this is also one.
For those of us who care about the history of the disability rights movement and
the acceptance of disability culture it is a tour de force of required reading.
Brown does not portray himself as a pioneer or visionary. He simple writes about
what has happened to him and what he did with it. It enables to reader to imagine the
power of their own life.
This book has a well deserved place of honor in the expanding genre of disability
history and writing. It also establishes Brown's place in the history.
More than that it exemplifies what one determined individual can accomplish
by wishing only to be happy and to make a contribution uniquely their own.
There is power here. A wonderful and historic book.
Surprised to be Standing: A Spiritual Journey OverviewA mysterious limp when I was five would be diagnosed as a rare genetic disease, foreshadowing decades of excruciating bone pain and accelerating immobility. In my mid-forties not even the most sophisticated medical technology could detect my bone density, which shocked me into digging deep inside to tackle longstanding, but often ignored, personal angers and sorrows and choose between submitting to a life of ongoing pain and desperation or propelling myself into healing and liberation.
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